Charlene is still very cranky in the day. It's very weird. She would be sleeping in the morning (tat's the time I read the Bible, pray or play DS Lite). And all of a sudden at 11+, she would wake up and start crying non-stop. And it will take very long before she is comforted. And this will go on and off throughout the afternoon but once the sun sets and night falls, she becomes the quiet and good Charlene.
And after she cried, feeding her milk immediately will result in vomiting.
We thank God that we are somehow coping with it. One thing we do know is Charlene is a clean girl. So we check and ensure Charlene's wet gauze, diaper and shirt gets changed. If all that is done and she is still crying, we have to rock, pat, sing song etc. And if it still doesn't work, we just have to wait till she stops. Maybe, it's the 'phlegm' (not too sure if it is or salivia) that is making her uncomfortable. Sometimes I put her in prone and she is able to quieten down and sleeps.
I really don't know why she is so cranky in the day. A few possible reasons.
1. Her brain damage resulting in her inability to control her emotions and behaviour
2. Side effects of anti-convulsants
3. Temperature in the day too hot for her
4. She is uncomfortable but we fail to satisfy her needs
5. Evil spirits
And something is freaky also. If the day is a good day, i.e. 0-1 episodes (seizures) or frequency of vomitting, when we talk about it or think about it, almost immediately things will start to go wrong and go the other way. And we start to think that it is a taboo to say and behave like superstitious individuals. It must be the devil's way to make us do such things to draw us away from God.
We will not be afraid and will continue to trust in the Lord with all our heart!
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