10 June 10

Charlene's current medical status

1. Seizures
The new medication (Topiramate) was added 26 May. Hard to tell if it's effective cos the frequency differs day to day. On a good day maybe 2 episodes. On a bad day, 10 episodes. However, we thank God that at least it wasn't in clusters (meaning a couple within say an hour). The duration has also shortened. On average, each episode is about 10 sec.

We continue to believe and pray that God will heal Charlene's brain and the seizures will stop when she grows up.

2. Reflux
We thank God that her reflux has gotten better. We think that Charlene has learnt to better control her sphincter muscles. She seldom vomit all her milk out without reason now. It's only when she coughs or strains to pass motion, she will vomit some milk.

3. Behaviour
Previously, Charlene won't cry for milk when she is hungry. But now she does.
Previously Charlene won't cry when she is being poked with needles. But now she does.
Previously Charlene won't cry when she's upset (wants to be carried/ gauze wet). But now she does.

4. Oral feeding.
Charlene has started taking food through her mouth. And she's obviously enjoy eating the brown rice, bec she chews on it enthusiastically. However  she tires easily and can tahan only 10 minutes.