31 Mar 10

31 Mar 10


We brought Charlene back to KKH for appointments. As the button is leaking badly, we brought her to the Children Surgery Centre (CSC). However, there wasn't much tat could be done. The nurses simply cleaned it up and placed thick gauze on it. However, Charlene was obviously irritated and started crying. The more she cries, the more it leaks and the more it leaks, the more she cries. And when she cries, we can't really feed her milk cos she would almost certainly vomit.

She cried continuously so much so that the physiotherapist was shocked by her change in temperament. She can't play and do developmental exercises if she continues crying in this manner.She was also shocked by the leaking button and told us to get it fixed.

We have to rushed back to the CSC. This time the nurses saw how bad the leakage was, as the button "popped" up whenever Charlene cries, and leaked gastric juices. The primary surgeon was not in hospital till next mon, so the nurses had to call another doctor in. They decided to put some gel to block the hole and asked us to monitor and come back the next day.

When we reached home, we were totally exhausted. It doesn't help that Charlene had a few episodes late in the night.

The good news is that Charlene has grown in height (56cm), weight  (4.87kg)and head circumference (37cm)! Even though she's still at the 3 percentile, at least her growth is with the normal 3 percentile range.

Lord, we pray that Charlene will be able to take in food orally, so that the stoma can be removed. Lord, while we pray for that day to come, the stoma will stop leaking so that we can better take care of Charlene.