8 Feb 10
I have left a question note for the neurologist. He called me on my way to KKH. He still thinks that the bradycardia is indicative of seizures, because of the whole body trembling.
I’m not very happy with the explanation. It was not as if in previous months, Charlene did not have any trembling. Last month, we were worried that its seizures and kept asking the Jan doctor team. They kept emphasizing that seizures would be accompanied by drop in oxygen level (which does not happen for Charlene). They tried hard to convince us its due to GERD, and all of a sudden, this new team said its seizures.
And we do not understand the hospital plans. 1st they cut the feeding down, and now they are planning to increase the seizure medication. If the bradycardia situation improves, what do we attribute the cause to? The doctor wasn’t able to answer.
Charlene is more alert today. Maybe bec the physio came.
Dez did some exercises for Charlene, stretch her hands and legs and train her neck muscles. We also did some (simple) experiment to see whether Charlene was looking at the card (big red heart) which physio left behind. It seems to be so, because Charlene kept trying to touch the card. And Charlene is trying to turn again. Praise God, for we can see Charlene’s capacity to learn!
Dez did some exercises for Charlene, stretch her hands and legs and train her neck muscles. We also did some (simple) experiment to see whether Charlene was looking at the card (big red heart) which physio left behind. It seems to be so, because Charlene kept trying to touch the card. And Charlene is trying to turn again. Praise God, for we can see Charlene’s capacity to learn!
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