Must read! I was crying as I read this article....
Notes from a Dragon Mum
http://www.nytimes.com/2011/10/16/opinion/sunday/notes-from-a-dragon-mom.html
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We chose the name Charlene because of its meaning "Strong Little Beauty". The name was chosen before the birth on 27 0ct 2009. Amazingly, the meaning is very apt for our daughter as she remains strong and steadfast throughout her period of affliction. She passed away peacefully in mummy's arms and went to Heaven on 14 May 2013.
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