Charlene was asleep when she started her physiotherapy. She was angry at being awakened - she whined and showed black face. Afterwhich she had occupation therapy. As she was very cold, the therapist covered her up and played slide and swing with her. But she continued to remain cold. So we wrapped her up and put her on a wedge. The therapist trained her head control by getting her to turn to the side where the toy (it was a singing school bus) was. Charlene smiled happily and when I told her "no more", she protested ("eh") and didn't want to leave. Her occupation therapist was very pleased and surprised by Charlene's responsiveness.
The wait at the neurologist is freaking long and not much of use. Status quo. Continue to wean off topomax...
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