Charlene's neurologist called me in the morning and advised me on the next course of action. Basically, the long term plan is still to take Kappra off for good (since she is only on it once a day for 0.6 ml). For now, to keep the seizures under control and back to the baseline (equilibrium), increase dosage of Topomax (which is the 4th medication that was recently added in June).
So, I increased the dosage of Topomax by 1ml at night.
Tonight, we went to Charlene's friend 1 year old birthday party. The girl and Charlene used to be neighbours in NICU. Am glad to have contact with parents who have children of other chronic conditions. Cos only they truly understand the difficulties and the heart pain of seeing your own child suffer.
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