13 Jan 10
The consultant in charge of the month, Dr Gomez came to speak to me. He said that he will speak to senior surgeon to review operation procedure, risk and success rate. He re-emphasized that operation would reduce reflux, reduce chances of choking greatly. Leaving Charlene as she is now exposed her to the risk of choking and aspiration, pneumonia and chest infections.
He also said that he is monitoring the super-frown (which started on 11 Dec and will happen on average twice a day, the pattern is also evolving). He explained to me that the super-frowns are related to reflux and not seizures (but I am too stupid to understand what he is saying).
Then he said he was one of the first who noticed Charlene’s jitteriness on that first morning. He said he was not sure it’s seizures and thus put Charlene on the EEG. The EEG results showed the worst seizures he had ever seen in his 30 years of doctor career. It was so bad that they called the previous head of neurology back to discuss the case. Praise God that the seizures are kept under control with one medication!
Charlene is really a strong kid. We saw the nurse doing suction on her. Though she flinched a little, she was quite calm and did not cry. At the end, we saw tears in her eyes. Other babies would have wailed throughout the suction.
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