After the cutting down of potassium bromide, we noticed Charlene exhibiting more episodes of straining and sudden loud cries. In the past, we would have classified them as fits. But during the previous EEG recordings, the EEG showed that they were not fits.
Worried about the increase in such episodes, we called the hospital last week. The EEG lab tech readily helped us to arrange for an appointment with Prof Ong. We are really thankful to the EEG technologist for so promptly arranging for us this appointment.
On the advice by the lab tech, we recorded the episodes on our camera. Prof Ong saw the videos and heard our descriptions. He said that they don't look like fits to him, as Charlene do not freeze completely. To him, it sounded like Charlene was exhibiting behavioural problems, aka unhappy and crying. When Prof Ong gave his assessment, Charlene gave a loud "ummmhhhh" as if she agrees with the assessment. We were very amused.
Prof Ong commented that Charlene is exhibiting more movements, which is a good sign as it is better than being completely unresponsive. He also commented that Charlene cognitive age is probably around 3-months old.
That is completely within our expectations, as we know Charlene's range of movements and behaviours is inline with that of a 3-month baby. But we continue to thank God for His blessings on Charlene. Every little thing in Charlene's life are bonuses to us, as we do not have any prior expectations for her. We pray that God's plan includes her complete recovery, but even if that is not the plan, we will love her as God loves us. We pray to God to bless us the strength to continue down this journey.
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