The cut in potassium bromide has yielded good and bad effects. Charlene's reaction time has improved. She will cry loudly if her needs (wet diaper, hungry) are not met. The moment the diaper is changed or milk is fed, she will stop crying immediately. Also, if she has not played enough of her music toy and we stopped playing, she will protest by shouting.
The bad news is her biological clock is totally screwed. She can be awake for 16hrs and sleep for the next 1.5days. And she tends to be awake through the night. It has really been very difficult to do anything productive with her. It is truly holidays for Charlene. The worse thing is her intolerance towards the cpap only worsens her sleep apnea.
We do not know what has caused her sleep patterns to become so erratic and whether it could be the result of a reduction in potassium bromide. Her neurologist was away on leave the whole week. Please pray that God will grant Charlene good quality sleep and that she can be awake in the day and asleep at night.
Saturday, December 1, 2012
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