9 Jan 11
Charlene was a very good girl to her Mummy and Daddy during worship. She was very awake, alert and attentive throughout the songs and worships and (surprise) during Pastor Timothy sermon too. She whined a little when the songs stopped, which is her typical self.
She was also surprisingly alert throughout the day. She only slept at 7plus. Seems that she had settled into this new cycle; wake up at abt 5-6am, whine a little & demand to be carried, nap for abt an hour in the afternoon, sleep in the evening and throughout the night. Its much easier to care for her in this routine cycle as we don't have to wake up in the middle of the night.
We are counting our blessings for her new routine cycle. We are not taking it for granted bec we know how things can change quickly. I found a MPEI online support group and been reading a lot of stories. From the stories, Charlene could have turn out to be much more difficult to handle. We know that God is with us throughout this difficult period of affliction.
However, her seizures frequency is a cause of concern. Whenever she sleeps, her freq will go up to once a hour. That's very scary as the timing is very accurate i.e 8pm, 9pm, 1005pm,1115pm. Lord, we prayed that You extend Your healing hands upon Charlene and cure her of the seizures. By your stripes, let Charlene be healed! Amen.
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