22 Dec 10

The doctors came at 9am and saw that Charlene's gut has more or less cleared - no traces of bile. They gave instructions to resume feeding slowly. After 2 hours, Charlene was still not fed and I went to ask the nurse. Apparently, the nurse did not know. The docs did not tell her verbally and the nurse obviously did not read the case-note. And then the most ridiculous thing happened. The hospital run out of Enfagrow milk and the nurse asked me to go to the retail pharmacy to buy. And after I failed to get any, I have to tell them what to do (if not they might just conveniently not feed Charlene).

Thank God for the helpful nurse manager and the dietician who sorted things out and ensured Charlene can get her milk (the dietician say can use Gain IQ, not much difference).

And then despite instructions given at 9am that feeding can be resumed, Charlene was still not given all her medications and her fits were still every hourly. Finally at 6pm, I went to ask the doctor why she was not given medication and only then the doc told the nurse to do it.

After all of Charlene's anti-convulsants went in, her seizure frequency began to fall.