At 2am, the Lord woke me up (that's what I think) and I checked Charlene's temperature -- 38.8 deg. I gave her panadol, sticked the Kodomo fever kool on her head and put the ice pillow under her back and went back to sleep. At 4am, Dez woke me up and said that Charlene's fever is not subsiding. It is at 39.6deg and sponging with ice water for 15mins doesnt even lower the temperature.
We rushed Charlene back to A&E.
The doc said she is breathless and gave her some oxygen and admitted her.
The fever began coming down and her seizures stopped after 825am. But Charlene is totally knocked out (either cos she is sick or cos of drowsiness caused by potassium bromide). However, the doc heard some phlegmy noises coming from the lungs and sent her for chest X-ray. They suspect lung infection and took some blood for blood culture test.
Dr Tan (the geneticist) came to tell me some interesting stuff. She said that many things could cause seizures. But to cause both seizures and the heart muscle to be big, not many causes. She said one likely hypothesis that could explain for Charlene's condition could be mitochondria disorder. She said that unless we want a second child, she would not suggest verifying it as the procedure is an invasive one (a surgery to take out a muscle for testing). However, if it is really mitochondria disorder, taking some coenzymes might help in controlling seizures. But she said wait for potassium bromide to settle first. Anyway, the good news is that 2 other medications that Charlene is on (not anti-convulsants) can be stopped cos they don't seem to help in controlling her seizures. Basically, Dr Tan prescribed them cos it was difficult to determine if Charlene was lacking in these vitamins which could cause the seizures. This could save us $300+ a month. Thank God!
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