3rd - 7th Sept 10

3rd - 7th Sept 10

The doctor wanted to send Charlene home on the 3rd cos based on their records she is doing well. But the truth is she was not maintaining her oxygen when she's asleep and I was quite concerned. Consistent deprivation of oxygen to her organs is not good at all. But ridiculously, she only needed 0.1% of oxygen. It reminded us of her then SCN neighbour who went home with oxygen tank cos the boy needed 0.1% of oxygen and couldn't be weaned off. For a few days, Charlene was like that. We were worried but we continued to pray and trust in God.

The most likely reason is that Charlene's upper airway; her nose and throat are still very blocked. And that's affecting her breathing and causing her not to maintain her oxygen. True enough, after the physio did the suction for her, she was able to maintain for a few hours.

We thanked God that Charlene's cough got better and her upper airway was more cleared and she maintained her oxygen levels.

However, we could not bring her home cos she started having very bad diarrhea (must have caught some infection in the ward).

Charlene's biological clock turned the other way again. She could not sleep probably due to the withdrawal of Kappra (her first anti-convulsant medication) at 12 midnight. We finally took Kappra totally off her after 3 months? But the frequency of her seizures are not stabilised yet. With hindsight, we got my mother in law to do the night shift with my father in law. And true enough, our naughty girl was awake throughout the night and demanded to be carried by her granny.

My parents in law claimed that they saw Charlene turn!