27 May 2012

Thank God for His providence! I was asking my tuition boy's mum whether she has any lobang to buy cheaper foam gym mat. And she managed to get second hand free from her friend. On top of that, her friend also gave 2 pieces of lycra cloth (will discuss with school OT to see if it's feasible to make into a lycra swing), some tactile animal toys and a storybook. And my tuition boy's mum was so kind to drop them off at my place on a taxi on her way home from church. I am really grateful! The gym mat would have cost $200.

24 May 2012

Charlene was smiling throughout OT today. Her therapist was very happy. Charlene even rolled on the ball without being too upset. All thanks to the distraction from her favourite toy train. Charlene was put inside the lycra swing and the OT played with her with her hands in midline and her hands in the middle

23 May 2012

During soft play today, I left Charlene lying on the slide and tell her to slide herself down. Teacher taught her that she has to move her butt. Charlene did just that for the first 2 slides and went down by herself. The third time, Charlene started jerking her head backwards and arching her body so that she would slide down faster. It is amazing how fast she can learn all these incorrect things. Hahaha... 

Once more, she was whining to her physiotherapist through the session....

21 May 2012

Charlene was standing in her stander for 20 mins in class. While she was standing with her arms on a table, her teacher wanted her to feel the ice cubes (which has some texture on it). Charlene had such a reaction that she pushed the whole tray away. She also vocalised and indicated that she doesn't want to play with it. Good awareness Charlene!

18 May 2012

Charlene's biological clock shifted again and she was sleeping through the day. I decided to bring her to Nuh by taking the Mrt. We had to change to the Circle Line at Bishan. There was a little inconvenience as I had to look for the directions and the lift. However, the MRT trip only took 40mins. And I spent a total of $6 (including taxi fare from my house to Yishun MRT) as compared to $24 (cab fare from my house to Nuh). It was huge savings.

It was a rather long wait to see the dr. The junior dr was very nice and I liked the fact that he was honest and sincere. He knew it was beyond his capability as Charlene's case is complicated. He was very nice to call his mentor who was even nicer to come down specially to see Charlene even though he was not running a clinic that day. To us parents whose children are special needs, a doctor who has a heart is very important.

14 May 2012

Charlene had her annual eye check today. Structurally, everything's fine but the eye dr is again unsure whether she can see or not (cortical visual impairment; i.e. the neurological connection between the brain and the eyes).

However, after a year, it seems as though Charlene's long-sightedness (meaning she can't see near) has not improved. So the dr asked if we would like to make spectacles to see if it helps Charlene to see better. Her left eye is 600 degrees and her right eye is 200 degrees. I decided to try it out since it may not be that expensive.

9 May 2012

Charlene's fever is gone. Her body should have successfully fight the infection. But the diarrhea was persisting and it has been 6 days. I was hesitating whether to send her to the hospital for a precautionary check. It could mean spending additional $200 or worse being admitted and spending additional $ and exposing her to more germs and viruses. My friends from the support group told me to go. So, I prayed about it and decided to bring her.

Nuh children A&E was rather empty when I reached. After hearing me, the doctor concluded that it should be viral infection. The diarrhea might take a couple more days. He prescribed probiotics and another medicine to harden stools. God then provided an opportunity for us to seek a second opinion by helping us with a referral to see the nuh neurologist. When we got out of the doctor's room, the waiting area was packed. After collecting the medicine, we left. The man at the door was shocked when I asked where is the taxi stand. He asked if I have seen the doctor. Thank God, it only took us 45mins and the trip achieved its purpose.