Sunday, July 31, 2011
31st July 2011
During worship this morning, the moment the song 'Amazing Grace' was played, Charlene's face brightened up and she even raised her left arm 3 times!
Friday, July 29, 2011
29-30 July 2011
The speech therapist in school saw Charlene today and taught me to do oral stimulation exercises for Charlene. I am always worried that Charlene will choke. But the less practice Charlene has, the worse her swallowing will be.
I passed Charlene to teacher Dilah and went to the toilet. When I went to Charlene again in the multiple-sensory room, she was upset and throwing tantrum. Both teachers confirmed that she was not like that in my absence and only started when I came into the room. She must have been upset at me for 'dumping' her...
On sat morning, I told Charlene that it's Sat and Mummy needs to go teach tuition. She immediately whine. And when I left her alone in the room, she threw tantrums the moment I walked in. We are really glad that Charlene knows what's going on!
I passed Charlene to teacher Dilah and went to the toilet. When I went to Charlene again in the multiple-sensory room, she was upset and throwing tantrum. Both teachers confirmed that she was not like that in my absence and only started when I came into the room. She must have been upset at me for 'dumping' her...
On sat morning, I told Charlene that it's Sat and Mummy needs to go teach tuition. She immediately whine. And when I left her alone in the room, she threw tantrums the moment I walked in. We are really glad that Charlene knows what's going on!
Wednesday, July 27, 2011
27 July 2011
Charlene is still coughing quite badly. On our way to the school bus, Charlene coughed and puked. I was carrying her in the sarong. With a backpack and a hand fan, I simply needed extra hands. I shouted at the bus uncle that my child is vomiting and he came down to help me take the stuff.
Throughout the whole journey, Charlene kept coughing non stop. The bus uncle and auntie were worried she would puke again (this time in the bus). She didn't, Thank God.
Charlene made many responses while playing the slide in school today.
Somehow I felt that after this stay in the hospital, her responses have heightened. :)
Throughout the whole journey, Charlene kept coughing non stop. The bus uncle and auntie were worried she would puke again (this time in the bus). She didn't, Thank God.
Charlene made many responses while playing the slide in school today.
Somehow I felt that after this stay in the hospital, her responses have heightened. :)
Friday, July 22, 2011
22 July 2011
Thank God!
Charlene is recovering well. She is still coughing at times. Last night, she was awake and smiling!
Charlene is waiting to be discharged.
Charlene is recovering well. She is still coughing at times. Last night, she was awake and smiling!
Charlene is waiting to be discharged.
20 July 2011
Charlene started having high fever yesterday. But it was below 39deg so we didn't send her to hospital immediately. After sponging her and with the cooling pillow, her fever will come down. But if we didn't do any of that, her fever will come back up.
At 2am, her fever went up to 39.1 deg. Despite been given panadol and sponging, the fever did not go away. 1.5hrs later, we decided that we have to send her in for her sake. She also coughed and vomited everything that was fed to her.
After she was warded, the fever came down. But the coughing was terrible. She will cough and cry at night and sleep through the day despite all the disturbances.
At 2am, her fever went up to 39.1 deg. Despite been given panadol and sponging, the fever did not go away. 1.5hrs later, we decided that we have to send her in for her sake. She also coughed and vomited everything that was fed to her.
After she was warded, the fever came down. But the coughing was terrible. She will cough and cry at night and sleep through the day despite all the disturbances.
Wednesday, July 13, 2011
13 July 2011
Charlene is wide awake for school. But the moment I laid her on the gym mat in front of the mirror, she starts to whine. Only after I took a Winnie-the-Pooh toy, did I get her attention. She continued to whine throughout physio.
When we reached class, she sat and after hearing songs, began to smile. :)
Today, I saw Charlene move her right palm away from an orange Teddy bear and picked the crocodile. She took a few minutes but it was really heartening to see her being able to respond in this way. We went to soft playroom and Charlene enjoyed her slides. Initially she didn't want to count till ahe heard Teacher Adeline's commanding voice. She even slide down by herself. Charlene also got used to the ball pool. She whine but at least not throwing tantrums.
When we reached class, she sat and after hearing songs, began to smile. :)
Today, I saw Charlene move her right palm away from an orange Teddy bear and picked the crocodile. She took a few minutes but it was really heartening to see her being able to respond in this way. We went to soft playroom and Charlene enjoyed her slides. Initially she didn't want to count till ahe heard Teacher Adeline's commanding voice. She even slide down by herself. Charlene also got used to the ball pool. She whine but at least not throwing tantrums.
Monday, July 11, 2011
11 July 2011
Charlene was given 2 toys to choose; yellow Teddy bear and spider. To my surprise, she chose the Teddy bear by dropping her palm from the spider.
Charlene is awake for hydrotherapy and was whining as the water is a little cold. But she sat very well and also did some hip exercises.
Charlene is awake for hydrotherapy and was whining as the water is a little cold. But she sat very well and also did some hip exercises.
Friday, July 8, 2011
8th July 2011
I needed to cook lunch so I left Charlene in her playroom with air con and the music 'Incy wincy spider' playing on my iTouch. When I switched to another music, she got upset and started whining. I played back the spider song and she kept quiet till it's time to go to school.
Wednesday, July 6, 2011
6 July 2011
Charlene has 3 appointments in KKH today. I was mentally geared to handle her alone. Dez bought me a heavy breakfast and I spent the time preparing the bag and things to bring. Both times I fed Charlene, she coughed. I thought carrying her upright might help. But both times she puke saliva out.
I remembered wondering "Like that how"? Immediately, I prayed to God that He will bless me on our journey to KKH that Charlene will not puke, poo, leak etc. I prayed that I would be able to manage and handle her in whatever situation. I also pray that I will be blessed with taxi uncles who will be gentlemen and will help me with the pram.
I feel confident and at peace. Charlene slept the moment we set off at 11am. The taxi uncle helped me load and unload the pram. When we reached KKH, the patient service assistant who took Charlene's weight was a familiar face; one of the blessing that God has blessed us with in our early days of taking care of Charlene. This lady will give us encouragement and show us concern. It was the same each time I bumped into her. She will ask about Charlene and encouraged me that Charlene's growth is cos I took good care of her. This time, she said that she felt the confidence in me in taking care of Charlene.
Charlene slept through physiotherapy even in the neurosuit.
The cardiologist appointment dragged as the consultant wanted an ultrasound. Charlene's main heart muscle remained mildly thick. The cardiologist who did the scan was quite determine to find a diagnosis for Charlene's condition. When they told me that they suspect Charlene has sleeping disorder and that may cause her heart problem.
So they gave us a referral to the sleeping clinic. I was quite amused as a year ago I have been telling the neurologist to send Charlene to the sleeping clinic. Anyway, I thank God that finally Charlene is going for the sleep clinic (though they are fully booked till Dec).
I also managed to feed Charlene 150ml of water on 3 different occasions n 50ml of milk. I also collected her med at the pharmacy before heading home.
When I reached the house lift lobby, the lift door opened right in front of me without me pressing it. I am v grateful for a blessed day and felt that God is by my side watching me and giving me strength and help.
I remembered wondering "Like that how"? Immediately, I prayed to God that He will bless me on our journey to KKH that Charlene will not puke, poo, leak etc. I prayed that I would be able to manage and handle her in whatever situation. I also pray that I will be blessed with taxi uncles who will be gentlemen and will help me with the pram.
I feel confident and at peace. Charlene slept the moment we set off at 11am. The taxi uncle helped me load and unload the pram. When we reached KKH, the patient service assistant who took Charlene's weight was a familiar face; one of the blessing that God has blessed us with in our early days of taking care of Charlene. This lady will give us encouragement and show us concern. It was the same each time I bumped into her. She will ask about Charlene and encouraged me that Charlene's growth is cos I took good care of her. This time, she said that she felt the confidence in me in taking care of Charlene.
Charlene slept through physiotherapy even in the neurosuit.
The cardiologist appointment dragged as the consultant wanted an ultrasound. Charlene's main heart muscle remained mildly thick. The cardiologist who did the scan was quite determine to find a diagnosis for Charlene's condition. When they told me that they suspect Charlene has sleeping disorder and that may cause her heart problem.
So they gave us a referral to the sleeping clinic. I was quite amused as a year ago I have been telling the neurologist to send Charlene to the sleeping clinic. Anyway, I thank God that finally Charlene is going for the sleep clinic (though they are fully booked till Dec).
I also managed to feed Charlene 150ml of water on 3 different occasions n 50ml of milk. I also collected her med at the pharmacy before heading home.
When I reached the house lift lobby, the lift door opened right in front of me without me pressing it. I am v grateful for a blessed day and felt that God is by my side watching me and giving me strength and help.
Saturday, July 2, 2011
Photos of our new place
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| TV console and our white TV |
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| Living room |
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| Master Bedroom - Built-in wardrobe |
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| Kitchen |
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| Charlene's playroom - lime green wall |
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| Our mini extendable dining table- tempered glass top with wooden legs |
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